AMS Support Network
When my son Connaire was born on New Years Day 2007 he was diagnosed with Ablepharon Macrostomia, a very rare syndrome with characteristics such as the lack of/very underdeveloped eyelids, a wide "fish-like" mouth, microcephaly, microtia and dwarfism. There are many symptoms involved with AMS, each patient may have all or a few and the severity of these symptoms varies greatly.
At present there is very little information about AMS available on the internet. Here at AMSSN our aim is to bring the families affected by this rare condition together in order to support each other. As I myself have found since having my son, you gain the most satisfaction talking to someone who has "Been There" and "Done That"!
I'm dedicating this website to our gorgeous son Connaire and welcome feedback and comments from all visitors. You can see our home photos in the gallery, or find out how he's doing on our News page. I'll be updating them regularly!
If you require information on any of the features associated with AMS please contact us.
WELCOME
(This website was created on 01/12/2007)
Don't forget to sign our Guest Book before you leave, you can view all messages in the Visitors Comments page!
