Any information or resources which prove to be useful will be added to this page, if you have any links which you think should be added please contact us.

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Click on the links below

Ablepharon Macrostomia Syndrome; alternative diagnosis, Barber-Say Syndrome

Reports of patients with Ablepharon Macrostomia Syndrome

Chromosome 18 and Ablepharon Macrostomia Syndrome

The Restricted Growth Association

Information on Cutis Laxa (connective tissue disorder)

If you would like to know more about me, click on the link below to view my Facebook profile (you must be/ become a member of Facebook to view profiles in full but it is free to join if you choose to) 

Rachel Armstrong